Living with chronic illnesses like Inflammatory Bowel Disease (IBD), Crohn’s disease, ulcerative colitis, or bladder and bowel cancer can be incredibly challenging. For some, the journey involves considering or undergoing ostomy surgery. This article aims to provide a clear, informative guide on ostomy surgery, helping those who are contemplating the procedure or have been told they will need it soon.
What is Ostomy Surgery?
Ostomy surgery creates an opening (a stoma) from an area inside the body to the outside. This is usually done to divert waste out of the body when the natural route is damaged or diseased. The most common types are:
Colostomy
Connects the colon to the abdominal wall.
Ileostomy
Connects the ileum (part of the small intestine) to the abdominal wall.
Urostomy
Diverts urine away from a diseased or damaged bladder.
Why Might Someone Need Ostomy Surgery?
Several conditions may necessitate ostomy surgery, including:
Chronic conditions like Crohn’s disease and ulcerative colitis can severely damage the intestines.
Cancerous sections of the bowel may need to be removed.
Severe cases can lead to bowel damage.
Trauma to the abdominal area might require bypassing the damaged section.
In severe cases, the bladder may need to be removed, requiring a urostomy.
Conditions like interstitial cystitis or neurogenic bladder may necessitate a urostomy.
Types of Ostomies
Temporary Ostomies
Sometimes used to allow the bowel to heal after surgery or severe inflammation. These can often be reversed.
Permanent Ostomies
Sometimes used to allow the bowel to heal after surgery or severe inflammation. These can often be reversed.
The Surgery Process
Pre-Operative Preparation
The Operation
Post-Operative Care
Includes medical evaluations, discussions about the stoma’s placement, and psychological preparation.
Typically performed under general anesthesia, the procedure duration depends on the type and complexity of the surgery.
Involves hospital recovery, managing the stoma, and learning to use ostomy appliances.
Living with an Ostomy
Adjusting to life with a stoma can be a significant transition. Here are some key points to consider:
Ostomy Appliances
Pouches and other devices are designed to collect waste. They come in various types to fit different needs and lifestyles.
Diet and Nutrition
Some dietary adjustments may be needed, especially initially. Many people can return to their normal diet over time.
Lifestyle Changes
Most people with ostomies can lead active, normal lives, including participating in sports, swimming, and travel.
Emotional and Psychological Support
It’s crucial to seek support from healthcare providers, support groups, or mental health professionals to navigate the emotional aspects of living with an ostomy.
Common Concerns and Myths
Odor
Visibility
Activity Restrictions
Modern ostomy appliances are designed to control odor effectively.
Ostomy bags are discreet and often not noticeable under clothing.
With proper care and protection, most physical activities can be resumed.
Resources and Support
Healthcare
Team
Support
Groups
Educational Materials
Surgeons, ostomy nurses, dietitians, and mental health professionals.
Online and in-person communities can provide invaluable support.
Books, websites, and workshops offer extensive information on living with an ostomy.
Conclusion
Ostomy surgery, while life-changing, can provide significant relief from the symptoms of chronic illness and improve quality of life. Understanding the procedure, post-operative care, and lifestyle adjustments can empower you to make informed decisions and live confidently with a stoma. Always consult with your healthcare team to get personalized advice and support tailored to your specific situation. Remember, you’re not alone—many resources and communities are available to support you on this journey.
Join the STOMASSIST Community
Sign up for STOMASSIST today and start receiving the personalized support you deserve.
Everything is easier
with A helping hand
Having someone to talk to, who went through the same experiences,
is the best way to find answers and solutions.